“Penning something so personal can be a very scary thing. I’ve been toying with the idea about writing about my alopecia for the longest time now, but every time I open up a blank document my mind becomes empty. It’s not there isn’t much to say, but rather that there is too much to say. The impact that alopecia has made on my life has been such a significant one and it makes me wonder every day who I would be if I didn’t have it? Has my alopecia shaped who I am today or rather that and external factors? I’ve always believed that we are products of our environment, and I’d like to believe that I would be just as socially aware as I am today, but who knows?
I was diagnosed with alopecia at the age of 7. I didn’t have a clue how it would affect me until I got older and more self-conscious. Don’t you wish that sometimes that you could go back to the days where you weren’t as self-aware? In this day and age of social media it can get be very easy to sink into a rabbit hole of pretty faces, perfect bodies, full-bodied hair and wonder to yourself why that can’t be you. There have been many a time this has happened to me.
Writing has always helped with letting out a lot of the negative feelings I have associated with alopecia, and whilst I still harbour some of them, the temporary relief I feel once I’ve typed everything out is nice. I wish it was like that all the time. Which is why I’ve decided to curate this book of letters which also includes my alopecia journey. I wanted to loop in other people’s stories because despite us all having alopecia, not everyone’s story is the same. I always think it’s important to hear other people’s perspectives because there is always a story that someone can relate to.
My exact feelings about my alopecia are convoluted. It’s been a long road to get to where I am today and I honestly wouldn’t be here if it weren’t for my family, friends or the alopecia community I found on Instagram. As a writer, I feel like this idea should have come to me a long time ago but I guess good ideas take time.
I’m releasing this eBook for free because I just want everyone to hear our stories. No, I want everyone to hear us shout about our stories from the rooftops and be loud, proud and happy with how far we have come. Any donations are welcome to either or the charity in your respective country.
I just want to reiterate something I wrote on my blog, which is: we got this. It may not get any easier (let’s not lie), but if we’ve got the support and the care and the love, then we can do this. We absolutely can.”